With sickle cell disease (SCD) predominately affecting people of African descent, understanding how to improve SCD outcomes is crucial to rectifying health disparities.
The National Heart and Lung Association funded several centers to participate in the Sickle Cell Disease Implementation Consortium. This study, published in the Journal of Immigrant and Minority Health, analyzed these centers’ strategies in recruiting participants for SCD studies.
Each of the eight participating sites was required to recruit 300 people with SCD over 20 months’ time. All participants were between 15 and 45 with a confirmed diagnosis of SCD. Statistical analysis was used to determine the most effective recruitment strategies.
Ultimately, 2,432 participants were recruited. Of this total, 95.3% were African American. Recruiting at clinics was found to be the most successful recruitment strategy, providing 68.1% of study participants. Recruiting at affiliated sites was the second most successful recruitment strategy, providing 15.6% of study participants. Recruiting at community events, emergency departments, and pain centers were the least successful recruitment strategies.
The researchers concluded that recruiting at clinics and affiliated sites were the most effective strategies in recruiting participants for SCD studies. Moreover, they asserted that successful recruitment of participants for multi-site studies requires multiple recruitment strategies .
Source: Masese, R. V., DeMartino, T., Bonnabeau, E., Burns, E. N., Preiss, L., Varughese, T., Nocek, J. M., Lasley, P., Chen, Y., Davila, C., Nwosu, C., Scott, S., Bowman, L., Gordon, L., Clesca, C., Peters-Lawrence, M., Melvin, C., Shah, N., & Tanabe, P. (2020). Effective recruitment strategies for a sickle cell patient registry across sites from the sickle cell disease implementation consortium (SCDIC). Journal of Immigrant and Minority Health, 23(4), 725–732. https://doi.org/10.1007/s10903-020-01102-6